Irish Raynaud's & Scleroderma Society

Who Are We?

Our goal is “Earlier Diagnosis, Better Treatments and Equality of Care”

We are:

Registered Charity that raises funds to administer relief, support research, and increase awareness of Raynaud’s & Scleroderma.
A Volunteer Group that receives no core government funding, and is reliant upon sponsorship, goodwill, and fundraising. You can DONATE online.
A Patient Support Society always available to our members, providing support, advice, and information.

We support:

All those with Raynaud’s and/or scleroderma in Ireland

Their families and friends

Our members

The medical profession
Healthcare professionals, such as therapists, carers, and hospice workers

We provide:

To date we have donated:

• Nailbed Capillaroscopy Systems:
  
  • Full-size to 4 large hospitals
  • Hand-held to 9 hospitals with Rheumatology clinics
• Medical equipment such as hospital beds and wheelchairs
• Fuel grants to members
• Warmth products to members
• Help with insulation and home modification to members
• Welfare Rights Service to members
• Our time and attention to all who ask

We supply our members with:

Information leaflets to all requests
Three advice lines
Books on diagnosis to all GPs in Ireland
A warmth products mail-order service
6 newsletters per year
Regional meetings
Annual Patient Conference
Access to expert opinion

How can we help patients?

• By increasing awareness
• By improving the rate of diagnosis
• By improving treatment through information to patients and medical professionals
• By offering support to those afflicted
• By keeping Ireland on track with current advances

About the IRSS

The Irish Raynaud’s & Scleroderma Society (IRSS) was formed in 1988, and is a registered charity and a limited company. Funded by the generosity of volunteers and sponsors, we work constantly to help sufferers to face two very challenging conditions. Two part-time employees are supported by a Management Committee of nine, and answer to a Board of Directors. We help people to live as normal a life as possible, to learn how to cope with Raynaud’s and understand their scleroderma.