Irish Raynaud's & Scleroderma Society

Useful Links

Rare Diseases Week

Visit the Rare Disease Week website at http://rarediseaseweek.ning.com

Scleroderma Research Foundation

A non-profit foundation to fund world-class basic and clinical research for better treatments and eventually, a cure, for scleroderma.

www.sclerodermaresearch.org

Scleroderma Webmaster

Scleroderma Webmaster’s Association http://www.sclero.org

EULAR

The European League Against Rheumatism www.eular.org

EUSTAR

Eular Scleroderma Trials and research group www.eustar.org

Patient Support Groups

Australia

Scleroderma Australia www.sclerodermaaustralia.com.au

Belgium

(Flemish Speaking)

Chronische Inflammatoire Bindweefselziekten vzw www.cibliga.be

(French Speaking)

A.P.S.B.  Association des Patients Sclérodermiques de Belgique www.sclerodermie.be

Cyprus

Cyprus League Against Rheumatism. www.rheumatism.org.cy Email:(JavaScript must be enabled to view this email address)

Denmark

Danish Scleroderma & Raynaud Association www.sklerodermi.dk

Finland

Skleroderma-ryhmä E-Mail: (JavaScript must be enabled to view this email address)

France

Association des Sclérodermiques de France (A.S.F.) www.sclerodermique.com

Germany

Sklerodermie Selbsthilfe e.V www.sklerodermie-sh.de

Greece

EEASA
Greek Society for Systemic Autoimmune Diseases.  E-mail: (JavaScript must be enabled to view this email address)

Hungary

Országos Scleroderma Közhasznú Egyesület.  Website: www.scleroderma.hu 

Email: (JavaScript must be enabled to view this email address)

Italy

G.I.L.S.   www.Sclerodermia.net
A.I.L.S. (Associazione Italiana Lotta alla Sclerodermia)  www.ails.it
A.P.MA.R. Onlus (Associazione Pugliese Malati Reumatici)  www.apmar.it
A.S.S.Ma.F (Associazione per lo studio della Sclerosi Sistemica e delle Malattie Fibrosanti) www.assmaf.org

Netherlands

N.V.L.E.  www.nvle.org

NORWAY

Sklerodermigruppen I Norsk Revmatikerforbund.  Email: (JavaScript must be enabled to view this email address)

Poland

Patient support group www.twardzina.pl

Portugal

Liga Portuguesa Contra as Doenças Reumáticas.  Website - www.lpcdr.org.pt  

Email- (JavaScript must be enabled to view this email address)

United Kingdom

Raynaud’s & Scleroderma Association http://www.raynauds.org.uk

Scleroderma Society www.sclerodermasociety.co.uk

Spain

Asociación Española de Esclerodermia - A.E.E. www.esclerodermia.org

Switzerland

(french speaking) 

Association Romande des Sclérodermiques (ARS) www.sclerodermie.ch

Rest of the world:

USA and Canada

Scleroderma Society of Canada http://www.scleroderma.ca

http://www.sclero.org/
http://www.scleroderma.org/
http://sclerodermasupport.com/
http://www.ihavescleroderma.com/